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To conduct a multi-center prospective study over more than one year requires an efficient system that can synchronize collection of data from several sources in real-time and facilitate remote data management. This paper describes the design and use of an in-house data collection and sample information management system that was used in a prospective birth cohort study in Thailand. Participants were enrolled from three hospitals and were required to visit their respective hospital and complete self-administered questionnaires (SAQ) at every visit. The in-house informatics system required integration of the data collection streams that can handle three different types of data (SAQ, clinical record, and laboratory sample tracking). The system has been implemented in the pilot phase of a birth cohort study and has demonstrated its usability for further application to an expanded study.

Original publication

DOI

10.3233/shti220045

Type

Journal article

Journal

Studies in health technology and informatics

Publication Date

06/2022

Volume

290

Pages

125 - 129

Addresses

Department of Paediatrics, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Bangkok, Thailand.

Keywords

Humans, Cohort Studies, Prospective Studies, Medical Informatics, Surveys and Questionnaires, Birth Cohort